Conocé la historia de Virsaviya, la nena que vive con su corazón fuera del pecho

Viral #rusia #Nena #instagram #enfermedad #corazón #Fit girl #Pentalogía de cantrell

Su madre rusa es una fit girl de Instagram que conmueve en las redes con imágenes de la pequeña de 7 años que padece una rara enfermedad

Estefanía Lisi

25 de Marzo de 2018

Conocé la historia de Virsaviya, la nena que vive con su corazón fuera del pecho — Virsaviya, la niña con el corazón hacia afuera | Foto: @dariborun

Esta pequeña de 7 años es reconocida en las redes sociales por su madre Dari Borun, una fit girl de Instagram que busca concientizar acerca de la enfermedad de su pequeña, mostrando su belleza a los usuarios.

Summer just ended but it's never ends in Miami so I always have to be in shape��as usually I'm staying in shape with @SkinnyMintCom and their #SuperFatBurning gummies, one bottle for the morning and another for the afternoon �� Of course my #VirsaviyaWarrior don't take it , she need no fat burn ��but she just want to be on every single picture with me �� because she loves me so much �� #SkinnyMint #FatBurning #ad You guys can use promo code LABOR20 applicable for 28 day and besties Teatox �� @fit_thick_riri #fitthickriri #staystrong #stillstrong #stillbeautiful #ilovejesus #jesuslovesyou #prayerswork #ibelieve #healthy #healthylife #healthylifestyle #jesuslifestyle #jesuslife #godisgood #godisgreat #jesusheals #jesussaves #powertv #promotion #theellenshow #oprah #tv

Una publicación compartida de ✨��@fit_thick_Riri��✨ (@dariborun) el 1 de Sep de 2017 a la(s) 6:37 PDT

Virsaviya padece Pentalogía de Cantrell, una rara condición que provoca que su corazón permanezca por fuera del pecho. Ella se muestra en la cuenta de Instagram de su mamá como una nena feliz, aunque tenga una salud frágil.

Today I just wanted to say thank you to everyone who supports us �� who loves us and pray for us and give us any help . May Jesus give y'all 100 times more then you guys have done for us ��✝️ we are so happy to have this much love that we receive from you every day . Thank you for spreading words about our story , thank you for trying to defend us from those people who saying something bad about me and my daughter✊��thank you to those who follow us for years and to those who just joined our journey and remain faithful �� also to those new people who keep on asking me questions I wanted to explain one more time about my daughter's condition 1. The Condition's name is pentalogy of Cantrell . It's when heart is outside because the part of a rid cage and part of an abdominal muscles is missing. It's also means that heart and arteries don't work properly . Virsaviya's case has pulmonary hypertension and birth heart defects. Her intestines also outside and she don't have a diaphragm. 2. She don't have a belly button because her umbilical cord was attached to her heart when she was born and now all you can see it's a scar in the middle of her heart . So yes she is unique in this case too 3. She is 8 and a half years old 4. Her name is Virsaviya this is a biblical name . In Russian bible its sound Virsaviya in English Bathsheba, in Hebrew Beersheba or Beersheva בְּאֵר שֶׁבַע . It was a beautiful queen mother of wisest King Solomon and wife of a greatest king David #VirsaviyaWarrior #VirsaviyaArtHeart �� #ijustloveher #ijustloveyou #godbless #staystrong #stillalive #stillstrong #stillbeautiful #jesussaves #jesuslives #jesuslifestyle #jesuslovesyou #godisgood #godisgreat #godschild #inspiration #prayerworks #ibelieve

Una publicación compartida de ✨��@fit_thick_Riri��✨ (@dariborun) el 26 de Ago de 2017 a la(s) 11:24 PDT

Contra todos los pronósticos que auguraban los médicos, Virsaviya llegó a su edad con muchos cuidados y amor.

"Además del corazón y los intestinos, no tenía parte de los músculos abdominales, ni tenía diafragma, tampoco parte de los huesos del pecho", le contó en su momento Dari a BBC Mundo.

This little Minnie Mouse doing great with her stretching �� my talented #VirsaviyaWarrior #VirsaviyaArtHeart �� #ifeelblessed #ijustloveher #ijustloveyou #inspiration #godschild #staystrong #stillalive #stillstrong #stillbeautiful #godisgood #godisgreat #jesussaves #jesusheals #ilovejesus

Una publicación compartida de ✨��@fit_thick_Riri��✨ (@dariborun) el 27 de Ago de 2017 a la(s) 8:58 PDT

La madre y su hija son de origen ruso pero se encuentran actualmente radicadas en Florida, EE.UU, para poder tratar a la nena con médicos especializados.